ehlers danlos syndrome · gastroparesis · Uncategorized

I Am Zebra Strong

*Content may be triggering. Talk about Gastroparesis flares (bodily functions malfunctioned) and mental illness* I keep reminding myself that I am Zebra Strong. I am a chronic illness warrior. I got this. Living with chronic illnesses is tough. Living with rare chronic illnesses is tough. Living with rare chronic illnesses is tough. Sometimes I wonder… Continue reading I Am Zebra Strong

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chronic illness · Uncategorized

#Chronicallyill365

I'd been thinking last year of ways that I could raise more awareness about chronic illnesses, more specifically, add emphasis on the CHRONIC part of chronic illnesses. You see, people tend to forget what chronic means in terms of illness. Many, many times, people have been surprised that I'm not better, that I'm still sick,… Continue reading #Chronicallyill365

accessibility · disability · disabled · ehlers danlos syndrome · Uncategorized

When People Don’t Help

Being disabled means that I can need help doing things that able bodied people can do with no issue. Some of these things require specific accommodations, and with other things, I rely on the kindness of other people. Friday night I went to a concert with my sister and our friend. I had emailed the… Continue reading When People Don’t Help

deaf · disability · disabled · ehlers danlos syndrome · gastroparesis · health insurance · Uncategorized

Having A Chronic Illness/Disability Isn’t Cheap

It seems to be a common misconception that people on government assistance have so much money. Like me for example. I'm on Medicare, Medicaid, and SSDI. That means I'm rich, right? Wrong. So, so, so wrong. While I am thankful that I don't have medical bills to pay, I still have copays and things that… Continue reading Having A Chronic Illness/Disability Isn’t Cheap