I’d been thinking last year of ways that I could raise more awareness about chronic illnesses, more specifically, add emphasis on the CHRONIC part of chronic illnesses. You see, people tend to forget what chronic means in terms of illness. Many, many times, people have been surprised that I’m not better, that I’m still sick, or that I’m still sick even though I’m dressed up and out of the house. People forget that even on good days, my chronic illnesses are still there. People forget, chronic illnesses don’t go away, yes, we have good days and bad days, but chronic illnesses are here to stay.
A few days before the New Year, I decided that starting January 1st, I would post a picture a day with the tag #chronicallyill365 on Instagram. A year of my chronically ill life in pictures. The good, the bad, the ugly. I’ve already shown things I normally wouldn’t have. Its turned out to be kind of a freeing experience. Instead of working on hiding the bad, I’m showing it. And its making me feel very empowered. I don’t know where this will go, but I’m really looking forward to Dec. 31st when I can look back on this year in pictures. I’m hoping that this will be a reminder to the able bodied that chronic illnesses don’t magically go away. We just get really good at hiding things.
I encourage any chronically ill person to take part in this if you want to. It doesn’t have to be a daily thing. My intent with the #chronicallyill365 tagline is to emphasize the fact that I am chronically ill all of the time.
If you want to follow this project, you can find me on Instagram as thedeafzebra.