Abbreviation and Phrase Guide

Abbreviations:

  • EDS= Ehlers-Danlos Syndrome
  • hEDS= Ehlers-Danlos Syndrome hypermobility type
  • vEDS= Ehlers-Danlos Syndrome vascular type
  • cEDS= Ehlers-Danlos Syndrome classical type
  • PCOS= Polycystic Ovarian Syndrome
  • IBS= Irritable Bowel Syndrome
  • IC= Interstitial Cystitis
  • HOH= Hard Of Hearing
  • EVAS= Enlarged Vestibular Aqueduct Syndrome
  • GP= Gastroparesis
  • PCP= Primary Care Physician
  • ASL= American Sign Language
  • GERD= Gastroesophageal Reflux Disease
  • HAs= Hearing Aids

Phrases:

  • deaf= a person with hearing loss
  • Deaf= a person who identifies with Deaf Culture. A helpful way to remember the difference between Deaf and deaf is that all Deaf people are deaf, but not all deaf people are Deaf
  • Spoonie= a chronically ill/disabled person that identifies with “The Spoon Theory”  https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
  • Zebra= someone with a rare disease. People with EDS are called medical zebras. Taken from the phrase many medical professionals learn in medical school “if you hear hoof beats, think horses, not zebras”
  • Sign= American Sign Language, commonly referred to as ASL, but also called Sign, capitalized because its referring to ASL. If referring to sign language in general, lowercase is used
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