disabled · ehlers danlos syndrome · Uncategorized · wheelchair

Wheelchair Denial

Last year, I got serious about getting a proper wheelchair. The one I have is from Drive Medical, and it doesn't help me the way I need it to, AKA, it doesn't help me be independent. I went to my primary care last May and we got the ball rolling. I researched DMEs (Durable Medical… Continue reading Wheelchair Denial

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accessibility · disability · disabled · ehlers danlos syndrome · life with disabilities

Products For Lazy People

You know what I'm tired of? Seeing a really useful product only to read that the person who shared it thinks its "making us lazy" or reading the comments and seeing many people saying that people who buy these products are just plain lazy. Let me tell you something, a lot of these products are… Continue reading Products For Lazy People

allergies · food allergies

Being A Deaf Adult With Severe Allergies

When you hear about food allergies, it's usually a news story about a school that's gone nut-free due to students with allergies. In fact, it's really easy to find information about kids with food allergies. There's support groups, websites, articles. But, what about adults? A common misconception is that kids grow out of allergies or… Continue reading Being A Deaf Adult With Severe Allergies

ehlers danlos syndrome · gastroparesis · Uncategorized

I Am Zebra Strong

*Content may be triggering. Talk about Gastroparesis flares (bodily functions malfunctioned) and mental illness* I keep reminding myself that I am Zebra Strong. I am a chronic illness warrior. I got this. Living with chronic illnesses is tough. Living with rare chronic illnesses is tough. Living with rare chronic illnesses is tough. Sometimes I wonder… Continue reading I Am Zebra Strong

accessibility · disability · disabled · ehlers danlos syndrome · Uncategorized

When People Don’t Help

Being disabled means that I can need help doing things that able bodied people can do with no issue. Some of these things require specific accommodations, and with other things, I rely on the kindness of other people. Friday night I went to a concert with my sister and our friend. I had emailed the… Continue reading When People Don’t Help