disabled · ehlers danlos syndrome · Uncategorized · wheelchair

Wheelchair Denial

Last year, I got serious about getting a proper wheelchair. The one I have is from Drive Medical, and it doesn't help me the way I need it to, AKA, it doesn't help me be independent. I went to my primary care last May and we got the ball rolling. I researched DMEs (Durable Medical… Continue reading Wheelchair Denial

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Bracing · ehlers danlos syndrome · Perfectly Posh · Uncategorized · wheelchair

Massive Update

Ugh, I've been away from this thing longer than I've wanted to be. So much has been going on lately, and there's been a lot for me to process. Its all been good, for the most part, but its been a lot. In January, I became a Perfectly Posh Independent consultant. I'd been using Posh… Continue reading Massive Update

ehlers danlos syndrome · gastroparesis · Uncategorized

I Am Zebra Strong

*Content may be triggering. Talk about Gastroparesis flares (bodily functions malfunctioned) and mental illness* I keep reminding myself that I am Zebra Strong. I am a chronic illness warrior. I got this. Living with chronic illnesses is tough. Living with rare chronic illnesses is tough. Living with rare chronic illnesses is tough. Sometimes I wonder… Continue reading I Am Zebra Strong

accessibility · disability · disabled · ehlers danlos syndrome · Uncategorized

When People Don’t Help

Being disabled means that I can need help doing things that able bodied people can do with no issue. Some of these things require specific accommodations, and with other things, I rely on the kindness of other people. Friday night I went to a concert with my sister and our friend. I had emailed the… Continue reading When People Don’t Help

deaf · disability · disabled · ehlers danlos syndrome · gastroparesis · health insurance · Uncategorized

Having A Chronic Illness/Disability Isn’t Cheap

It seems to be a common misconception that people on government assistance have so much money. Like me for example. I'm on Medicare, Medicaid, and SSDI. That means I'm rich, right? Wrong. So, so, so wrong. While I am thankful that I don't have medical bills to pay, I still have copays and things that… Continue reading Having A Chronic Illness/Disability Isn’t Cheap