Uncategorized

When Doctors Don’t Tell You Results

There have been a handful of times that I have had tests done and found out the results through other means, not from the doctor ordering the test. Some have been minor, while others, like failing to mention my hearing loss at 10 years old, have been major. Its been a while since I've had to… Continue reading When Doctors Don’t Tell You Results

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deaf · disability · disabled · ehlers danlos syndrome · gastroparesis · health insurance · Uncategorized

Having A Chronic Illness/Disability Isn’t Cheap

It seems to be a common misconception that people on government assistance have so much money. Like me for example. I'm on Medicare, Medicaid, and SSDI. That means I'm rich, right? Wrong. So, so, so wrong. While I am thankful that I don't have medical bills to pay, I still have copays and things that… Continue reading Having A Chronic Illness/Disability Isn’t Cheap

chronic fatigue syndrome · chronic illness · ehlers danlos syndrome · Uncategorized

When “Tired” Doesn’t Explain It

One of the most difficult things about having Chronic Fatigue Syndrome is trying to describe to others what it is like. Many times I just say I'm tired, but tired doesn't properly explain it. Chronic Fatigue is more than being tired all of the time. Tired can be cured by a nap or a good… Continue reading When “Tired” Doesn’t Explain It

hysterectomy · PCOS · periods · Uncategorized

Hysterectomy Recovery: 8 Weeks-1 Year Post Op

In October, about 7 weeks post op, I got my EDS diagnosis! It has been really helpful because now doctors kind of know what do to with me now and can make better decisions. I got a third UTI shortly after the second, and my PCP put me on antibiotics. It was the same antibiotic… Continue reading Hysterectomy Recovery: 8 Weeks-1 Year Post Op